Purple Day - raising global epilepsy awareness

Today is Purple Day – a day started in 2008 by nine-year-old Cassidy Megan with the simple idea of bring people around the world together to teach others about epilepsy.

Since then it has grown to become an international epilepsy awareness day.

It is estimated that 1 in every 100 people worldwide has epilepsy and 50% of those have no known cause.  Epilepsy can occur following a brain injury.  It is more than just a physical condition and can also have an impact on a child or young person psychologically and socially. Youth Health Talk have a section dedicated to video clips of young people talking about all aspects of living with epilepsy from diagnosis and treatment options through to stratergies for helping at school and with friends and family.  You can watch a short video here:
Youth Health Talk have also gathered the key messages young people want to share to help others living with epilepsy:
  • Having epilepsy is not as bad as it can feel at first! 
  • Epilepsy doesn't need to stop you from doing anything you want. Try to focus on the positives in your life - you can still do all the things you'd always wanted and enjoyed, perhaps with a bit more care and planning.
  • Give yourself time, things will get 'a hell of a lot easier' in time.
  • Take every day as it comes.
  • On a low day, get onto epilepsy forums to chat with others and cry on a friend's shoulder.
  • Get information, information, information! The more information you have, the easier it is to cope and make decisions about lifestyle and treatments.
  • Don't be afraid to ask doctors questions - it's your right to know about YOUR condition.
  • Sharing your experiences with others on epilepsy web forums or in support groups can help.
  • Epilepsy is a very individual condition and affects every person differently - you are unique!
We'd love to hear what you've been upto for Purple Day - so please leave us a comment.
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