Millie shares her story for Disabled Children’s Partnership campaign

Millie, who was diagnosed with a rare brain tumour at age 10, has shared her story to raise awareness of the Disabled Children’s Partnership campaign, The Secret Life of Us.

The campaign, which launched last week, highlights the day-to-day lives of disabled children, young people and their families. Millie is paralysed on one side and uses a wheelchair, she also has a tracheostomy and requires ventilation at night to give her enough oxygen. Millie is unable to talk and uses an iPad to communicate. Yet her mum Emma receives almost no help on a day to day basis to support Millie with her health and social care needs. Emma said: “You see stories about disabled children in the news and you assume that there’s help out these for these families, that’s what I always used to think anyway. “But it’s not until your child becomes unwell and has severe disabilities that you realise there’s nothing there; support for disabled children is almost non-existent.” The campaign explains the similarities children with disabilities share with everyone in the things they love and enjoy, but also the unacceptable struggles they face on a daily basis, in living a life that we all take for granted. Mum Emma continued: “Everything becomes a battle – endless meetings, hours of phone calls, only to be told that there is no funding or you’re on a waiting list. It makes everything 10 times harder.” The Secret Life of Us campaign finds that more than 4 in 5 parents of a disabled child face problems accessing the services they need, with 56% believing this has a negative impact on their child’s health and well-being and half saying if affects their ability to make friends. The Disabled Children’s Partnership (DCP) is a growing coalition of 40 charities who have joined forces and work in close partnership with parents, to campaign for improved health and social care for disabled children, young people and their families. Find out more about the Disabled Children's Partnership.
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