Charity conducts survey to improve life for children and young people with brain injury

The Brain Tumour Charity is conducting a survey into the daily life and experience of healthcare for children and young people with brain injury.  

The charity explains "shockingly, the experiences of children and young people with a brain tumour diagnosis are not routinely recorded or analysed in the UK. Without this it is impossible to create the changes needed to improve diagnosis, healthcare and daily life. For this reason, we have commissioned research into daily life and experience of healthcare for children, young people and their families."  If you're aged 14-24, or are the parents or guardian of someone 24 or under who has had a brain tumour diagnosis, you can fill out our survey to help improve life for children and young people affected. Complete the survey here The survey closes on 23 December 2015 at 5PM. The charity goes on to explain "as part of our five year strategy to double survival and halve the harm, we have made it our priority to improve life today for those living with a brain tumour. In order to do this however, we need the evidence to support what we have heard anecdotally. "Earlier this year we commissioned research into what life is really like for adults with a brain tumour. The resulting report - Losing Myself - is aimed predominately at healthcare professionals and we use it to raise awareness and work with the NHS to improve services for those affected. "We're now working to widen our understanding of what life is like for children and young people living with this disease. We also want to find out how a brain tumour diagnosis and its long-term effects can impact on their families."
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